On Saturday the 18th of May the UMCG held its second edition of the Patients Day for rare movement disorders. Almost 50 volunteers of various backgrounds worked hard to make this day a success!
Approximately 250 patients and their loved ones were present to learn more about movement disorders, not only through contact with specialists, but also by sharing experiences and stories with each other. Special attention was paid to scientific research, but also problems patients experience every day. Workshops covered employment, the UWV, societal and pedagogical hurdles; as well as sources of support and sports.
The next edition of the patients day is scheduled for May 14, 2022. If you would like to support or Expertise Center so we can improve the care we provide our patients and organize more days like this in the future, we kindly direct you to look at Stichting Steunfonds UMCG for more information.